News - Pediatric Brain Tumor Foundation

September 28, 2023

12-Year-Old Brain Tumor Survivor Testifies to U.S. Senate, Urges Congress to Pass Accelerating Kids’ Access to Care Act

This morning, 12-year-old brain tumor survivor Charles Robert testified in front of the U.S. Senate Finance Committee and urged the committee’s members to support the Accelerating Kids’ Access to Care Act (S.2372 / H.R.4758). You can read his testimony here.

September 27, 2023

PBTF and Marsh McLennan Agency Host 19th Annual Auction and Broadcast Benefiting The Butterfly Fund Financial Assistance Program

The 2023 Marsh McLennan Agency (MMA) Charity Classic, benefiting the Pediatric Brain Tumor Foundation, will take place on Wednesday, September 27, with an auction and live broadcast, followed by their annual Cocktails & Cornhole event on October 24.

August 17, 2023

Pediatric Brain Tumor Foundation and Catching Up With Jack Team Up to Fund Critical Research Technology at University of Michigan

The Pediatric Brain Tumor Foundation’s funding is helping researchers advance methods to more quickly and accurately diagnose and monitor childhood brain cancers. We teamed up with longtime funding partner Catching Up With Jack to bring the QIAcube, an innovative and advanced centrifuge technology, to Dr. Carl Koschmann’s Koschmann Lab at the University of Michigan.

August 2, 2023

Goose Flights Awards Grant to Pediatric Brain Tumor Foundation in Memory of NFL legend Tony “Goose” Siragusa

Known for his happy-go-lucky personality as much as his role in the Baltimore Ravens’ resounding Super Bowl XXXV victory, Tony embodied everything good. His family and friends are now honoring his memory through Goose Flights and their support of the Pediatric Brain Tumor Foundation’s Butterfly Fund.

June 28, 2023

Summer 2023 Legislative Update: Childhood Cancer Bills We’re Tracking

The Pediatric Brain Tumor Foundation is committed to making kids with brain cancer a national health priority. We've recently endorsed and are actively monitoring several key pieces of legislation that could help families facing a child's brain tumor diagnosis. Read our latest advocacy alert to learn more about this legislation and other important childhood cancer policy news.

June 19, 2023

Managing the Long-term Effects of Childhood Brain Cancer

Finishing treatment for a pediatric brain tumor is a huge milestone for families. It's also the start of a new journey with a new set of challenges. As your child and family transition into survivorship and post-treatment life, it can be helpful to understand the late-term effects your child may experience and how to manage them.

June 16, 2023

Community Spotlight: Par for the Kids

Realizing there's no real cure for their son’s tumor was a shock to Elizabeth and Jason. They wanted to change things. They wanted to feel like they were doing something – not only for their son, but for the thousands of kids in their community and around the world who are living with brain cancer.

May 12, 2023

Navigating Changing Relationships After a Child’s Brain Tumor Diagnosis

Relationships with friends and family often change after a child is diagnosed with brain cancer. The Pediatric Brain Tumor Foundation hosted a webinar that presented important strategies to help you navigate these changing relationships while also taking care of yourself.

May 4, 2023

We need cures. We need action: A mother’s perspective on pediatric brain cancer

May is Brain Tumor Awareness Month, and the Pediatric Brain Tumor Foundation community will recognize this disease’s impact on families. We will share our stories. We will call on you and others to take action.

April 24, 2023

Jack: #55’s Drive Inspires Lifechanging Breakthroughs for Children with Brain Tumors

Jack’s parents, coaches, and teachers all describe him the same way: a helper, always there for others, never unkind or insensitive. He captivates people with his smile and draws them in with conversation. May 20, 2019 was the day life changed in the blink of an eye for his family when he was diagnosed with a brain tumor at age 11.

April 6, 2023

National Cancer Institute’s National Cancer Plan Provides Roadmap for Collaboration to End Cancer as We Know It

The National Cancer Institute (NCI) released a National Cancer Plan this week that provides a road map for collaboration across the federal government and all parts of society. The Pediatric Brain Tumor Foundation supports the plan’s emphasis on pediatric cancer research, but urges NCI to address unique challenges of childhood cancer detection and survivorship.

April 4, 2023

National Cancer Institute’s Small Business Innovation Research Program Seeks Radical Ideas to Transform Pediatric and Rare Cancer Care

Children with brain tumors deserve the brightest and most imaginative minds working on the next research breakthrough, but funding for untested bold ideas can be hard to find. If you have a radical idea to transform cancer care for children facing the deadliest childhood disease, the National Cancer Institute’s Small Business Innovation Research program wants to talk to you.

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