News - Pediatric Brain Tumor Foundation

May 12, 2023

Navigating Changing Relationships After a Child’s Brain Tumor Diagnosis

Relationships with friends and family often change after a child is diagnosed with brain cancer. The Pediatric Brain Tumor Foundation hosted a webinar that presented important strategies to help you navigate these changing relationships while also taking care of yourself.

May 4, 2023

We need cures. We need action: A mother’s perspective on pediatric brain cancer

May is Brain Tumor Awareness Month, and the Pediatric Brain Tumor Foundation community will recognize this disease’s impact on families. We will share our stories. We will call on you and others to take action.

April 24, 2023

Jack: #55’s Drive Inspires Lifechanging Breakthroughs for Children with Brain Tumors

Jack’s parents, coaches, and teachers all describe him the same way: a helper, always there for others, never unkind or insensitive. He captivates people with his smile and draws them in with conversation. May 20, 2019 was the day life changed in the blink of an eye for his family when he was diagnosed with a brain tumor at age 11.

April 6, 2023

National Cancer Institute’s National Cancer Plan Provides Roadmap for Collaboration to End Cancer as We Know It

The National Cancer Institute (NCI) released a National Cancer Plan this week that provides a road map for collaboration across the federal government and all parts of society. The Pediatric Brain Tumor Foundation supports the plan’s emphasis on pediatric cancer research, but urges NCI to address unique challenges of childhood cancer detection and survivorship.

April 4, 2023

National Cancer Institute’s Small Business Innovation Research Program Seeks Radical Ideas to Transform Pediatric and Rare Cancer Care

Children with brain tumors deserve the brightest and most imaginative minds working on the next research breakthrough, but funding for untested bold ideas can be hard to find. If you have a radical idea to transform cancer care for children facing the deadliest childhood disease, the National Cancer Institute’s Small Business Innovation Research program wants to talk to you.

March 31, 2023

Adita: Frente al “fantasma silencioso”

Adita es una niña inteligente, cariñosa, sana y dulce que le encanta la escuela y tiene una relación muy cariñosa con su hermanito Mario. Su vida cambió para siempre en noviembre de 2017, cuando comenzó su camino por un tumor cerebral pediátrico.

March 28, 2023

FDA Approves First Combination Targeted Therapy for Most Common Pediatric Brain Cancer

Low-grade gliomas are the most common pediatric brain cancer, and children with the BRAF V600 mutation typically experience poor survival outcomes and a less favorable response to chemotherapy, the current standard of care. With the FDA’s approval, Tafinlar + Mekinist is the first targeted therapy since chemotherapy that is approved as a first-line option for pediatric patients with BRAF V600E LGG.

March 24, 2023

Seizure First Aid for Pediatric Brain Tumor Families: Tips to Recognize and Help Someone Having a Seizure

A seizure can be one of the first signs of a brain tumor. They are also one of the most common late-term side effects that pediatric brain tumor patients and survivors experience after treatment. Having a seizure, or being with someone when they're having a seizure, can be terrifying. Because seizures can affect anyone, at any age, understanding what a seizure is and how to help someone having a seizure is important knowledge for everyone. For caregivers and loved ones of a child with a brain tumor, it's essential.

March 15, 2023

Ava Strong: One Mom’s Journey to Advocate for Better Childhood Cancer Treatments

Ava is full of life. She spends her days talking, singing, dancing, creating art and finding joy where she can. This May marks the second Brain Tumor Awareness Month since her cancer journey began.

February 24, 2023

High School and College Athletic Teams Unite Against the Childhood Cancer Community’s Biggest Crisis

Coaches and athletes from high schools and colleges across the country will team up this April against the deadliest childhood disease: pediatric brain cancer. The Pediatric Brain Tumor Foundation’s Vs. Cancer National Event returns for its third year, April 21-30.

February 22, 2023

Registration Open for Alliance for Childhood Cancer’s 2023 Action Days

The Pediatric Brain Tumor Foundation is pleased to announce that registration is now open for the Alliance for Childhood Cancer’s 2023 Action Days, which will be held on April 24th and 25th in Washington, D.C.

February 7, 2023

American Motorcyclist Association Award Recognizes Pediatric Brain Tumor Foundation’s Community Impact

The American Motorcyclist Association (AMA) has named the Pediatric Brain Tumor Foundation the 2022 Recreational Road Riding Organizer of the Year. AMA’s annual Racing and Organizer Awards recognize standout individuals and organizations from AMA-sanctioned competition and recreational endeavors for their profound impact in the motorcycling community. The longest-running national motorcycle charity program, the Pediatric Brain Tumor Foundation’s Ride for Kids provides road and offroad riders, racers, groups, and members of the moto industry the opportunity to help families facing the deadliest childhood disease: pediatric brain cancer.

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