Register to Be a Participant

The Pediatric Low-Grade Glioma Externally-Led Patient-Focused Drug Development Meeting on February 23, 2024 is an important opportunity for pediatric low-grade glioma patients, survivors, their families, and caregivers to speak directly to the FDA, pharmaceutical companies, and public about their current and past experiences with pLGG and the impact the disease has had on their daily lives.

The Pediatric Brain Tumor Foundation is looking for patients, survivors, family members, and caregivers who are interested in participating on one of two patient/caregiver panels or in our moderated audience conversations:

• Panelists will speak for 5 minutes about their or their family’s disease experience or treatment experience.  Panelists will work with the Pediatric Brain Tumor Foundation in advance to self-record their statements, which will be presented during the EL-PFDD meeting.
• Conversation Starters will participate live during the EL-PFDD meeting to help kick off the audience discussions; in addition to the EL-PFDD date, conversation starters will need to be available on February 22nd for an orientation and practice session.

If you would like to be considered for participation in the pLGG EL-PFDD meeting as a panelist or conversation starter, please complete the form below.

More information about the pLGG EL-PFDD meeting, including how patient families can submit comments and questions, can be found at curethekids.org/plgg-elpfdd. If you have questions or would like to speak with a member of our team, please email us at [email protected].