Connect with Us The Pediatric Brain Tumor Foundation provides educational resources and emotional support programs that connect families to one another and the larger pediatric brain tumor community. Take 2-3 minutes to complete our Family Connection Form today and our team will reach out to you within 48 hours.
Webinars Webinars feature carefully chosen experts with information and tools relevant to the pediatric brain tumor journey. These webinars also provide the practical voice of parents and caregivers in the journey.
Newly Diagnosed Resource Notebook Where and how families get information at the start of their journey matters. The Pediatric Brain Tumor Foundation partnered with medical experts and families to develop the practical tools and resources in our Starfolio Resource Notebook to help newly diagnosed families along the way.
Learn About Clinical Trials When doctors find a drug or other treatment they think might help treat pediatric brain tumors, they organize a clinical trial to learn what happens when a group of patients receive the drug or treatment. Understanding whether or not your child qualifies for a clinical trial can be confusing. We work closely with other organizations to support families wanting to learn more. Complete this brief form to connect with our team about clinical trials today.
Virtual Support Groups Our virtual support groups provide a safe, online space for families to connect and share their unique challenges with each other.
The Butterfly Fund Financial Assistance Program The Butterfly Fund is our emergency financial assistance program for families at 19 partnering institutions across the country, providing support for household bills, gas and grocery cards, counseling services and other out-of-pocket expenses.
Survivorship Resource Guidebook The Pediatric Brain Tumor Foundation collaborated with survivors, caregivers, and other members of the pediatric brain tumor community to put together a comprehensive guidebook with practical tools and resources for families in this time of transition.
Virtual Bereavement Groups Our virtual bereavement groups provide a safe, online space for families to connect and share their unique challenges with each other.
Peer to Peer Mentoring The Peer to Peer Mentoring program matches parents, caregivers, survivors, and siblings with mentors who have faced similar challenges in their journeys, providing much-needed personal connection.
Starry Night Community for Families An online Facebook community where families can connect, share stories, provide words of encouragement, and ask questions of each other in a safe environment.
Imaginary Friend Society The Imaginary Friend Society is an award-winning series of short, animated videos that teach kids about cancer treatment in ways that are easy to understand.
Share Your Story Telling your family’s story is a powerful way to raise awareness about pediatric brain tumors and help others facing a similar journey. We can work alongside you to craft and share a story unique to your journey. Complete our Share Your Story form and a member of our team will reach out to you.
Conéctese con Nosotros La Fundación Pediátrica de Tumores Cerebrales proporciona recursos educativos y programas de apoyo emocional que conectan a las familias entre sí y con la comunidad de tumores cerebrales pediátricos en general. Tómese 2 ó 3 minutos para rellenar nuestro formulario de conexión familiar hoy mismo.
Cuaderno de Recursos para Pacientes Nuevos El lugar y la forma en que las familias obtienen la información al inicio de su proceso son importantes. La Fundación Pediátrica de Tumores Cerebrales se asoció con expertos médicos y familias para desarrollar herramientas y recursos prácticos para ayudar en el camino.
