About Us

No parent believes their child will be diagnosed with brain cancer. When it happens, no patient, parent, sibling, or survivor should have to stand alone.

The Pediatric Brain Tumor Foundation is there for families facing the most common and deadliest form of childhood cancer, responding with resources and community support that address every family member’s needs. The largest patient advocacy funder of pediatric brain tumor research, PBTF also funds and advocates for innovative projects that lead to vital discoveries, new clinical trials, and better treatments – all bringing us closer to a cure. We’re able to do that because of people and partners committed to supporting families and ending childhood brain cancer.

Help us lead the way toward a future without childhood brain cancer.

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Latest News

December Advocacy Alert: Urgent Action Needed for Critical At-Risk Legislation; Alliance for Childhood Cancer’s Upcoming Action Days

Families affected by pediatric brain tumors face unique and profound challenges. Existing treatments are decades old and often do more harm than good to children’s developing brains, while administrative red tape causes unnecessary delays in families’ ability to access lifesaving care. To truly end childhood brain cancer as we know it, policymakers need to understand these challenges and commit to addressing them. Here are two opportunities to join your voice with other advocates and remind legislators that children with brain tumors deserve better.

Patient Advocate Participates in Congressionally Directed Medical Research Programs’ Peer Reviewed Cancer Research Program for the Department of Defense

The Congressionally Directed Medical Research Programs’ (CDMRP) Peer Reviewed Cancer Research Program (PRCRP) has been charged by U.S. Congress since Fiscal Year 2009 to fund innovative basic, applied, and translational cancer research to support Service members, their families, and the American public. The Pediatric Brain Tumor Foundation nominated patient family advocate Colin Raybin as a consumer advocate to participate in this year's evaluation of research applications submitted to the PRCRP.

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