Action Alert - August Recess
News & Updates
Stay current on pediatric brain tumor research breakthroughs, PBTF news, advocacy updates, and stories from the childhood brain cancer community.
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Christopher Brandle Joy of Life Foundation Commits to Two PBTF Research Grants
The Pediatric Brain Tumor Foundation (PBTF) has announced two research investment commitments from the Christopher Brandle Joy of Life Foundation, continuing a decade-long partnership in medulloblastoma research.
PBTF Advocates that are driving progress
Advocacy in Action
Discover how our advocates are driving progress after years of hard work—and it’s all thanks to inspiring individuals like these:
Moving Forward for the Kids
The Future of Pediatric Brain Cancer. PBTF addresses the closing of the PBTC and new ARPA-H funding. Learn how we are advocating for kids with brain cancer during this critical transition.
Advocacy Community Urges NCI to Protect Pediatric Brain Tumor Research and Trials
Kids With Brain Tumors Deserve Better
Working as One for Families
Pediatric Brain Tumor Foundation Statement on the Reported NIH Grant Review Pause
Accelerating Kids' Access to Care Act: Improving Healthcare for Children Across State Lines
The Accelerating Kids’ Access to Care Act, passed the U.S. House of Representatives on September 17 to improve children’s access to essential health care, while eliminating administrative burdens for providers and states.
Pediatric Cancer Neuropsychological Needs Assessment Act Introduced in New York Legislature
A new bill introduced in the New York State Legislature by Senator Shelley B. Mayer and Assembly Member Christopher Burdick will help remove some of the barriers standing between children with cancer and the learning accommodations they need to succeed in school. The Pediatric Cancer Neuropsychological Needs Assessment Act (NY State S.8750) would require insurers to provide coverage for neuropsychological assessments for children diagnosed with cancer that affects brain development or function.
