Working as One for Families
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Stay up-to-date about what's happening in childhood brain cancer research, advocacy, and family support, as well as organization news and partner spotlights from across the Pediatric Brain Tumor Foundation community.
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Pediatric Brain Tumor Foundation Statement on the Reported NIH Grant Review Pause
Accelerating Kids' Access to Care Act: Improving Healthcare for Children Across State Lines
The Accelerating Kids’ Access to Care Act, passed the U.S. House of Representatives on September 17 to improve children’s access to essential health care, while eliminating administrative burdens for providers and states.
Pediatric Cancer Neuropsychological Needs Assessment Act Introduced in New York Legislature
A new bill introduced in the New York State Legislature by Senator Shelley B. Mayer and Assembly Member Christopher Burdick will help remove some of the barriers standing between children with cancer and the learning accommodations they need to succeed in school. The Pediatric Cancer Neuropsychological Needs Assessment Act (NY State S.8750) would require insurers to provide coverage for neuropsychological assessments for children diagnosed with cancer that affects brain development or function.
Urgent Action Needed: Congressional Hearing on Accelerating Kids’ Access to Care Act
Recently, the Accelerating Kids' Access to Care Act gained significant momentum in Congress when Charlie, a 12-year-old brain tumor survivor and advocate with the Pediatric Brain Tumor Foundation, testified to the U.S. Senate Finance Committee about the hurdles families face when seeking treatment for their child. Now, to see it become law requires your immediate action.
Representatives Bera and Kelly Introduce Bill to Establish Pediatric Brain Tumor Patient Data Registry
12-Year-Old Brain Tumor Survivor Testifies to U.S. Senate, Urges Congress to Pass Accelerating Kids’ Access to Care Act
