Finding Hope and A Voice After a Brain Tumor Diagnosis
When Finn was diagnosed with a brain tumor, his family's world stopped. Learn how speaking up and finding the right support helped them navigate the journey.
The following letter was written by Nathan’s dad, an Internal Scientific Advisor at the Pediatric Brain Tumor Foundation:
Your generosity this holiday season has the power to change kids’ lives, just as it changed the life of my son, Nathan.
When Nathan was four years old, he was diagnosed with an inoperable, incurable brain tumor. As a scientist who works in drug development, I was shocked by the limited treatment options available. He faced the same chemotherapy treatments that had been used for decades… since before I was even born. After nearly four years of stability, his tumor started growing again. This time, though, there was another option.
In 2018, Nathan became the first child in the world to enroll in the Phase I clinical trial for what would become Tovorafenib/DAY101. Because of the support of Pediatric Brain Tumor Foundation donors, that trial happened, DAY101 is closer than ever to FDA approval, and Nathan is now starting his freshman year of high school.
As Nathan’s dad, I am forever grateful to the Pediatric Brain Tumor Foundation community. And as one of the foundation’s internal research advisors, I also see there’s so much more work we can do right now for children with brain tumors. Work that can’t happen if researchers don’t have funding.
That’s why I’m asking you to donate today.
The Pediatric Brain Tumor Foundation recently approved funding for several new research grants, but our Research Advisory Network has reviewed even more promising science that deserves funding – research that will accelerate the discovery of better ways to treat and diagnose all pediatric brain tumors.
Children like Nathan need your help in meeting this urgent need. So, please, don’t wait. Donate today.
When you donate to the Pediatric Brain Tumor Foundation this holiday season, your generous support of cutting-edge research, family support resources, and critical public policy will accelerate treatment breakthroughs and change kids' lives. Donate today to create a brighter tomorrow for children like Nathan and their families.
When Finn was diagnosed with a brain tumor, his family's world stopped. Learn how speaking up and finding the right support helped them navigate the journey.
Janet has supported PBTF for 24 years since her late husband Ronnie introduced her to Ride for Kids in 2012. Inspired by young survivor Xavier and continuing Ronnie’s legacy after 2022, their Houston Ride has raised over $1.3 million.