Support for Families

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From the moment of diagnosis through treatment and beyond, the Pediatric Brain Tumor Foundation community is here for your family every step of the way. Here you'll find resources and support for pediatric brain tumor patients and survivors, their parents, caregivers, and siblings.

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Brain Tumor Tissue Donation

Although tissue donation can be a difficult topic for parents to talk about, donating your child's brain tumor tissue can help researchers learn more about why some tumors don’t respond to treatment and how to prevent that in the future.


The Pediatric Brain Tumor Foundation works closely with Gift from a Child’s tissue donation navigation program to support families who are considering donating their child’s brain tumor tissue.

In our on-demand webinar, Tissue Donation: Your Most Pressing Questions Answered, Gift from a Child’s Patti Gustafson and Ginny McLean and Dr. David Kram, University of North Carolina Chapel Hill School of Medicine, discuss why pediatric brain tumor tissue donation is critical to future treatment breakthroughs and the process for choosing post-mortem tissue donation.

If you would like to learn more about tumor tissue donation, please take 2-3 minutes to complete the following form, and a member of our Family Support team will reach out to you within 48 hours.  When we reach out, we may ask for additional information about your child to assist us in providing the right resources.

If you have any questions, please contact us at [email protected] or 800-253-6530 and a member of our team can help connect you with answers and support.

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