Support for Families

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From the moment of diagnosis through treatment and beyond, the Pediatric Brain Tumor Foundation community is here for your family every step of the way. Here you'll find resources and support for pediatric brain tumor patients and survivors, their parents, caregivers, and siblings.

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Navigating Bereavement

A family should never be faced with saying goodbye to their child. Bereavement can be immense, overwhelming and ongoing. The Pediatric Brain Tumor Foundation provides bereaved families with opportunities to connect with others whose child or sibling has passed away because of a brain tumor.


Grief is a common and natural response for parents, caregivers, patients, and siblings to experience when a child is diagnosed with brain cancer: Grief in response to what your child will be missing, how your family is different, and your dreams for the future.

When parents, caregivers, and siblings experience the devastating loss of a child, they begin a new grief journey. Bereavement is complicated and life-long. While it includes grief and mourning, there can also be moments of hope and healing as families find ways to continue to love and honor their child’s life.

You are not alone.

You have told us this journey is unimaginable and the Pediatric Brain Tumor Foundation is committed to walking alongside you and providing your family comfort and support not just today, but in the weeks, months, and years ahead.

In the video below, bereaved mom Kelli shares a letter she wrote for other parents about this difficult and complicated journey only few can understand.

The Pediatric Brain Tumor Foundation provides bereaved families with opportunities to connect with others whose child or sibling has passed away and hosts informational webinars with practical resources about the bereavement journey.

Support Programs

Connect with Family Support

Peer-to-Peer Mentoring

Peer-to-Peer Mentoring

Peer-to-Peer Mentoring matches bereaved parents, caregivers, and siblings with others who have experienced a similar loss and can provide one-on-one support.

Support Groups

Support Groups

Our virtual bereavement support groups provide a safe, online space for parents and caregivers to connect and share their grief journey with each other.

Starry Night Community

Starry Night Community

An online Facebook community where families can connect, share stories, provide words of encouragement, and ask questions of each other in a safe environment.

On-Demand Webinars

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