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Survivorship Resource Guidebook

Finishing treatment for a pediatric brain tumor is a major milestone for families. It's also the start of a new journey with a new set of challenges. Our Survivorship Resource Guidebook is designed to help you navigate life after treatment ends.


If you’ve finished treatment for a childhood brain tumor – or if you’re the parent or caregiver of someone who has – the Pediatric Brain Tumor Foundation is here for you. We’ve collaborated with survivors, caregivers, and survivorship experts to put together a comprehensive guidebook with practical tools and resources for families navigating this time of transition.

Learn what questions to ask about long-term follow-up care, access templates for managing a survivor’s medical care, and read words of encouragement from other families like yours.

Fill out the following form to download the guidebook or request a hard copy. If you have questions or need additional support, email us anytime at [email protected].

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