Congressional Town Hall: Data for Pediatric Brain Cancer Act

The “Data for Pediatric Brain Cancer Act,” introduced recently in the House of Representatives by Congressmen Ami Bera, M.D. (D-CA) and Mike Kelly (R-PA), aims to establish a first-of-its-kind Pediatric Brain Tumor Real-World Data Registry Program.

Watch the recording of the Pediatric Brain Tumor Foundation’s March 2024 Congressional Townhall to learn more about this landmark legislation for the pediatric brain tumor community that would boost researchers’ data collection efforts, establishing real-world data sets that can be used to accelerate new treatment discoveries and clinical trials.

For this town hall, Rep. Bera was joined by Harsh Patel, his Health Policy Advisor, pediatric neuro-oncologists Dr. Michael Prados of UCSF and Dr. Ashley Margol of USC, and Rachel Kreiger, patient mom, advocate and founder of Ollie’s Orchestra, for a discussion and Q&A about why supporting this legislation’s journey through Congress is important to the future of pediatric brain tumor clinical trials.

To join us in advocating for this critical piece of legislation, fill out our advocacy interest form below. By uniting our voices, spreading awareness, and advocating for legislation like this, we can shape a better future for children with brain tumors, survivors, and their families.

If you have questions or would like to learn more about the Pediatric Brain Tumor Foundation’s federal and state-wide advocacy initiatives, email Mike Henry, the Pediatric Brain Tumor Foundation’s Director of Advocacy, at [email protected].