My DIPG Nurse Navigator Program

Award: $10,000 over 1 year (2022-2023)
Project Lead: Leslie Jared, RN, Chad Tough Foundation
Funding Partners: DIPG DMG Research Funding Alliance (DDRFA)

 When a child is diagnosed with brain cancer, parents and caregivers must quickly make critical decisions while navigating the shock of this devastating diagnosis. Getting up-to-date information about treatment options and side effects can be difficult, and families often find themselves alone in navigating immense physical, emotional, and financial challenges. Additionally, racial and socioeconomic factors make it harder to access resources like the clinical trials that are many families’ only hope. The new My DIPG Navigator (www.mydipgnavigator.org), is a free nurse navigator program designed to give families individualized, reliable guidance for the deadliest childhood brain cancer, DIPG (diffuse intrinsic pontine glioma)/DMG (diffuse midline glioma).