Decades of Research Impact

The largest patient advocacy funder of pediatric brain tumor research, the Pediatric Brain Tumor Foundation is wholly dedicated to moving the needle towards cures for the most frequently diagnosed and deadliest childhood cancer type.

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At the Center of Collaboration


Ending pediatric brain cancer requires a united effort from researchers, healthcare institutions, patient advocacy organizations, pharmaceutical companies, and the government. The Pediatric Brain Tumor Foundation is at the center of this collaboration, providing funding and strategic leadership to consortiums focused on solving specific challenges and conferences where scientists and clinicians across institutions and disciplines can learn from each other.

The Pediatric Brain Tumor Foundation’s support has launched pivotal initiatives such as:

Central Brain Tumor Registry of the United States' Statistical Report on Childhood and Adolescent Brain Cancer

In 2022, we funded a first-of-its-kind statistical report by the Central BrainTumor Registry of the United States (CBTRUS) to increase scientists’ and the public’s understanding of childhood brain cancer’s scope and severity. The results revealed that pediatric brain cancer is the childhood cancer community’s biggest crisis and provided insights that are shaping our response to this growing public health problem through advocacy, research funding, and family support. The report was published for a second time in 2025 providing additional insight into trends in childhood cancer community’s biggest crisis, brain cancer.

Children Brain Tumor Network (CBTN) Infrastructure Support

The Children’s Brain Tumor Network is building the data, technology, and human infrastructure that powers precision medicine for children with brain tumors worldwide, with more than 8,000 participants enrolled in one of the world’s largest open, AI-ready ecosystems of clinical, genomic, and imaging data. While federal grants fuel CBTN’s emerging technologies, our funding sustains the clinical research coordinators, imaging analysts, and data operations experts who capture and validate every child’s scans and clinical experience. Our support is designated specifically to advance medulloblastoma data collection and analysis within CBTN’s infrastructure, turning a scalable, collaborative framework into disease-specific progress for children with medulloblastoma.

Pacific Pediatric Neuro-Oncology Consortium (PNOC) Operations Center

PNOC’s Operations Center, made possible by the Pediatric Brain Tumor Foundation’s start-up funding, coordinates the activities and clinical trial protocols of more than 25 participating research centers around the world. Dedicated pediatric neuro-oncology laboratories and multidisciplinary teams work together to rapidly identify and implement new clinical trial concepts focused on patients’ tumor-specific molecular and genetic make-up.

Pediatric Low-Grade Glioma EL-PFDD Meeting

The pLGG EL-PFDD Meeting, hosted by the Pediatric Brain Tumor Foundation in 2024, offered a unique opportunity for pediatric low-grade glioma patients, survivors, their families, and caregivers to speak directly to the U.S. Food and Drug Administration (FDA), pharmaceutical companies, and the public about their current and past experiences with pLGG and the impact the disease has had on their daily lives.

Pediatric Low-Grade Glioma/Astrocytoma Coalition

This coalition includes clinicians and researchers from seven countries and 19 research institutions whose goal is to accelerate the pace of research into the most common form of pediatric brain tumors. Participants convene to find common ground for evaluating and treating PLGA patients and identify a scientific direction to better understand these low-grade tumors and target them for eradication.

Society for Neuro-Oncology’s Pediatric Neuro-Oncology Research Conference

After identifying the need for intensive, pediatric-focused collaborations, we provided funding to launch SNO’s Pediatric Neuro-Oncology Research Conference and have served as its premier patient advocacy partner for more than a decade. This biennial meeting offers participants a dedicated opportunity to present and learn about pediatric brain tumor research advancements.

Explore All Funded Research
Scientist working in the laboratory, looking through a microscope

Explore All Funded Research

Our database of currently and previously funded projects makes it easier than ever to learn about the research we fund. Search awards by keyword, pediatric brain tumor type, type of science, and institution.

Pediatric brain tumor patients, their families, and doctors depend on the Pediatric Brain Tumor Foundation to make sure progress towards a cure doesn't stop. But while the need for childhood brain cancer research grows, funding isn't keeping up. Help us close the research funding gap. Donate or start a fundraiser today.

The largest patient advocacy funder of pediatric brain tumor research, we won’t stop until there’s a cure for every childhood brain tumor. If you are a scientist, clinician, or fellow who is conducting or interested in pediatric brain tumor research, learn about open opportunities for research funding or email us to connect with our team today.