pLGG EL-PFDD Meeting Agenda
Friday, February 23, 2024
All times are Eastern Standard Time
curethekids.org/patientfocused
| 10:00 a.m. | Welcome and Opening Remarks Courtney Davies, President and CEO, Pediatric Brain Tumor Foundation |
| 10:05 a.m. | FDA Introduction to EL-PFDD Dr. Elizabeth Duke, Clinical Reviewer, U.S. Food and Drug Administration |
| 10:15 a.m. | Pediatric Low-Grade Glioma Clinical Overview Dr. Jason Fangusaro, Dir., Developmental Therapeutics, Children’s Healthcare of Atlanta |
| 10:30 a.m. | Discussion Format Overview and Audience Demographic Polling James Valentine, JD, MHS, Meeting Moderator |
| 10:45 a.m. | Session 1: Pediatric Low-Grade Glioma Symptoms and Daily Impacts James Valentine, JD, MHS, Meeting Moderator 10:45 a.m. Session 1 Panelist Presentation 11:10 a.m. Session 1 Moderated Audience Discussion and Polling |
| 12:30 p.m. | Break |
| 1:00 p.m. | Pediatric Low-Grade Glioma Treatment Overview Dr. Rob Lober, Dir., The Living Biobank, Dayton Children’s Hospital |
| 1:10 p.m. | Session 2: Pediatric Low-Grade Glioma Treatments James Valentine, JD, MHS, Meeting Moderator 1:10 p.m. Session 2 Panelist Presentations 1:35 p.m. Session 2 Moderated Audience Discussion and Polling |
| 2:45 p.m. | Meeting Summary Larry Bauer, RN, MA, Hyman, Phelps, & McNamara, P.C. |
| 2:55 p.m. | Next Steps and Closing Remarks Courtney Davies, President and CEO, Pediatric Brain Tumor Foundation |
After the event, a recording of the meeting will be available and the Pediatric Brain Tumor Foundation will publish a Voice of the Patient report based on the insights patients, families, and caregivers share during this meeting.
More information about the pLGG EL-PFDD meeting, including how patient families can submit comments and questions, can be found at curethekids.org/patientfocused. If you have questions or would like to speak with a member of our team, please email us at [email protected].
