Latest News & Articles
Stay up-to-date about what's happening in childhood brain cancer research, advocacy, and family support, as well as organization news and partner spotlights from across the Pediatric Brain Tumor Foundation community.
Hydrocephalus, commonly known as “water on the brain,” is a condition that can occur in children with brain tumors. It involves an accumulation of cerebrospinal fluid (CSF) that can cause increased pressure inside the skull, leading to various symptoms and complications.
Pediatric brain surgery is a profound medical procedure that demands careful attention during the recovery period. Understanding what to expect and how to prepare can significantly ease the process for both the child and their family.
For families confronting a brain tumor diagnosis, the emotional journey is often marked by significant anxiety and fear. Understanding how to manage these emotions is crucial for both the patient and their loved ones.
Getting families where they need to be without worrying about the cost of transportation.
The Pediatric Brain Tumor Foundation (PBTF) and Uber are joining forces to provide essential support for families navigating the challenges of pediatric brain tumors.
The Accelerating Kids’ Access to Care Act, passed the U.S. House of Representatives on September 17 to improve children’s access to essential health care, while eliminating administrative burdens for providers and states.
“This report lays groundwork to improve the experience of people living with this disease,” said Dr. Sanjay Gupta, CNN’s chief medical correspondent, one of the country’s leading neurosurgeons, and a member of PBTF’s Board of Directors. “I believe it shines a much-needed spotlight on the wide-ranging and extensive challenges that this type of tumor causes for patients and their families, and I am hopeful that this moment is a significant milestone for this community.”
The Pediatric Brain Tumor Foundation today announced the appointment of Ursula Burns and Jordan Wertlieb as inaugural members of the organization’s new Advisory Board. Burns and Wertlieb offer their exceptional business acumen and experience to PBTF, the largest patient advocacy funder of pediatric brain tumor research.
A new bill introduced in the New York State Legislature by Senator Shelley B. Mayer and Assembly Member Christopher Burdick will help remove some of the barriers standing between children with cancer and the learning accommodations they need to succeed in school. The Pediatric Cancer Neuropsychological Needs Assessment Act (NY State S.8750) would require insurers to provide coverage for neuropsychological assessments for children diagnosed with cancer that affects brain development or function.
