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Stay up-to-date about what's happening in childhood brain cancer research, advocacy, and family support, as well as organization news and partner spotlights from across the Pediatric Brain Tumor Foundation community.

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Cancer Gets Lost’s Online Charity Auction of Rare and Signed LOST Memorabilia to Benefit Pediatric Brain Tumor Foundation

Community Partners

Cancer Gets Lost’s Online Charity Auction of Rare and Signed LOST Memorabilia to Benefit Pediatric Brain Tumor Foundation

Cancer Gets Lost (CGL) has selected the Pediatric Brain Tumor Foundation as the benefiting charity for their 2024 LOST charity auction taking place online May 11-18 in recognition of Brain Tumor Awareness Month. This year’s Cancer Gets Lost auction will celebrate the show’s 20th anniversary by auctioning rare and signed LOST memorabilia kindly donated by fans, cast, crew, and creatives, as well as rare collectibles from Bad Robot and other projects LOST cast members have worked on.

Pediatric Brain Tumor Foundation Celebrates FDA Approval of Day One Biopharmaceuticals’ OJEMDA™, New Treatment for Common Pediatric Brain Tumor Type

Press Release

Pediatric Brain Tumor Foundation Celebrates FDA Approval of Day One Biopharmaceuticals’ OJEMDA™, New Treatment for Common Pediatric Brain Tumor Type

The Pediatric Brain Tumor Foundation is pleased to celebrate the FDA’s approval of Day One Biopharmaceuticals’ OJEMDA (tovorafenib), a new therapy for the treatment of pediatric low-grade glioma (pLGG), the most common brain tumor diagnosed in children. The FDA’s approval of OJEMDA represents a significant milestone for pLGG patients and their families. The new treatment also stands as a key breakthrough in the Pediatric Brain Tumor Foundation’s efforts to accelerate new treatment options for all children with brain tumors.

Pediatric Brain Tumor Foundation Awards More Than $1 Million in New Research Funding to Dana-Farber Cancer Institute

Research News

Pediatric Brain Tumor Foundation Awards More Than $1 Million in New Research Funding to Dana-Farber Cancer Institute

The Pediatric Brain Tumor Foundation (PBTF) proudly announces an infusion of $1 million to help researchers, led by Dana-Farber Cancer Institute’s Drs. Pratiti (Mimi) Bandopadhayay and Rameen Beroukhim, launch a study into a novel therapeutic target and expand their research into overcoming treatment resistance and rebound growth.

Urgent Action Needed: Congressional Hearing on Accelerating Kids’ Access to Care Act

Advocacy Alert

Urgent Action Needed: Congressional Hearing on Accelerating Kids’ Access to Care Act

Recently, the Accelerating Kids' Access to Care Act gained significant momentum in Congress when Charlie, a 12-year-old brain tumor survivor and advocate with the Pediatric Brain Tumor Foundation, testified to the U.S. Senate Finance Committee about the hurdles families face when seeking treatment for their child. Now, to see it become law requires your immediate action.

A Look Back: Celebrating the Community’s Impact in 2023

Blog Post

A Look Back: Celebrating the Community’s Impact in 2023

In 2023, the Pediatric Brain Tumor Foundation community answered the call to create a brighter future for children with brain tumors and their families. Read about what your support made possible in research, family support and advocacy.

Pediatric Brain Tumor Foundation Recognizes Outstanding Hospital Care Team Members with Inaugural Constellation Award for Childhood Cancer

Press Release

Pediatric Brain Tumor Foundation Recognizes Outstanding Hospital Care Team Members with Inaugural Constellation Award for Childhood Cancer

The Pediatric Brain Tumor Foundation, the leading champion for children with brain tumors and their families, is pleased to announce the first recipients of the Constellation Award for Childhood Cancer, which recognizes the exemplary dedication and compassion of hospital care team members who play a vital role in supporting pediatric brain tumor patients, survivors, and their families.

Pediatric Brain Tumor Foundation and Christopher Brandle Joy of Life Foundation Partner to Fund Phase-III SIOPE/CONNECT Study to Define New “Gold Standard” Treatment for Early Childhood Medulloblastoma

Research News

Pediatric Brain Tumor Foundation and Christopher Brandle Joy of Life Foundation Partner to Fund Phase-III SIOPE/CONNECT Study to Define New “Gold Standard” Treatment for Early Childhood Medulloblastoma

The Christopher Brandle Joy of Life Foundation is teaming up with the Pediatric Brain Tumor Foundation to fund a prospective international SIOPE/CONNECT phase-III study that aims to define the new “gold standard” of treatment for early childhood medulloblastoma and improve survivors’ cognitive outcomes.

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