Stories
Children with brain tumors and their families deserve to be seen and heard. The following stories feature families' and survivors' perspectives about the cancer journey from across the pediatric brain tumor community.
Your voice matters.
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A Dad’s Advice Regarding Help: Say Yes to Everything!
Brayson’s Incredible Journey: From Brain Tumor Survivor to NFL Equipment Manager and Mentor
Living with a Glioma: Eight-Year-Old Mackensie is an Inspiration
Mackensie's journey began in early 2018, just before her second birthday. Now an energetic eight-year-old third grader in Las Vegas, she has faced a path filled with medical challenges, surgeries, and treatments—facing each with remarkable courage and positivity.
From Despair to Hope: How Advocacy Saved Audrey's Life
Audrey, a spirited 5-year-old from Spartanburg, South Carolina, embodies a story defined by perseverance, the power of love, and a mother’s relentless determination to uncover the truth behind her child’s mysterious symptoms.
Mylah’s Story: Facing a Rare Diagnosis with Courage, Community, and Support
Advocacy Takes Many Forms – Gretchen Spreads PBTF’s Mission via Pageant Competitions
“I finally found my community, and it was life-changing,” says Gretchen about finding the Pediatric Brain Tumor Foundation and participating in a Ride for Kids event in 2017 when she was 16. “It took me almost 12 years to find people that I could actually have a conversation with [about my diagnosis and treatment], and my mom and dad felt that way too. It was an immediate bond with these families that we were meeting for the first time.”
Mick: A Childhood On Hold
"Children should not have to go through this disease and its treatments. You only get one childhood, and it hurts my heart to know that my son’s got taken away."
Defying the Odds: Chris’s Brain Tumor Diagnosis Leads to a Life of Service
Diagnosed with glioblastoma, a highly aggressive form of brain cancer, Chris has faced a prognosis that would shatter most spirits. At just 17 years old, he was given less than two months to live.
12-Year-Old Brain Tumor Patient Krystalyn Embodies the Power of Positivity
Alyssa: A Legacy of Faith and Helping Others
Alyssa was a bright and energetic child, excited to start sixth grade. She had just switched schools, and the upcoming year held the promise of new friendships and opportunities. But soon, Alyssa's journey took an unexpected and heart-wrenching turn.
