I remember April 28th, 2018 – the day my son Ezra was diagnosed with a brain tumor.
I remember his perfect round face and how he ran around on toddler feet all morning. I remember how swollen my eyes were from crying later that night having lived through my worst nightmare, wondering if I’d ever be okay again.
Most parents never think this could be their story one day, too. Right up until the minute we heard the words “your baby has a large mass in his brain” I honestly hadn’t ever considered that babies could get brain cancer.
May is Brain Tumor Awareness Month, and the Pediatric Brain Tumor Foundation community will recognize this disease’s impact on families. We will share our stories. We will call on you and others to take action.
Children with brain cancer can’t wait another week, another day, another minute for your support. When you donate to the Pediatric Brain Tumor Foundation, you help fund life-changing research and provide families with the resources and support they need. Don’t let pediatric brain cancer steal another future.
I’m honored to be part of the movement to end childhood brain cancer and to share our story with you. Throughout our journey, my family has gained perspective. I used to make myself sick worrying about long-term things. I mourned that Ezra wouldn’t be able to play sports again because of his vision loss. My bones ached that he would never be able to drive.
Then this past Fall happened. We received news that Ezra’s tumor had grown and his chemotherapy was no longer working. Surgery lasted nine hours, and made little difference in his outlook. To make matters worse, Ezra’s incision began leaking cerebral fluid, he felt unimaginable pain, and he began vomiting, which required a shunt.
It was an impossible situation.
My perspective changed. Worries about the future became worries about this day, this minute. I no longer trouble myself with the future. Perspective lies in the present. It’s the painful shock of a seasoned veteran who doesn’t want to see this disease happen to other beautiful babies.
We need cures.We need action.We need you to join the movement and donate today.
After Bennett was diagnosed with a brain tumor, his parents decided to do something not only for their son, but for the thousands of kids in their community and around the world who are living with brain cancer.
Jack: #55's Drive Inspires Lifechanging Breakthroughs for Children with Brain Tumors
Jack’s parents, coaches, and teachers all describe him the same way: a helper, always there for others, never unkind or insensitive. He captivates people with his smile and draws them in with conversation. May 20, 2019 was the day life changed in the blink of an eye for his family when he was diagnosed with a brain tumor at age 11.
Pediatric Brain Tumor Foundation Recognizes Outstanding Hospital Care Team Members with Inaugural Constellation Award for Childhood Cancer
The Pediatric Brain Tumor Foundation, the leading champion for children with brain tumors and their families, is pleased to announce the first recipients of the Constellation Award for Childhood Cancer, which recognizes the exemplary dedication and compassion of hospital care team members who play a vital role in supporting pediatric brain tumor patients, survivors, and their families.