Jacob’s Journey – From Cancer Survivor to Advocate and Leader

At just 14 years old, Jacob’s life changed forever. What seemed to be a routine sinus infection turned out to be something far more serious. Experiencing intense headaches and dizziness for months, Jacob finally underwent testing, where a CT scan revealed a brain tumor in his occipital and parietal lobes.

Within weeks, Jacob underwent surgery to remove the tumor. The procedure was successful, but not without consequences. He permanently lost peripheral vision on his right side and faced a long and arduous recovery. Struggling with chronic fatigue and barely able to climb a flight of stairs post-surgery, Jacob’s resolve to regain his strength and daily life wasn’t easy—but it was unwavering.

Finding Purpose through Advocacy 

While recovery was challenging, Jacob’s personal experience with brain cancer sparked something remarkable in him. His battle cultivated a deep interest in brain tumor research and advocacy. This passion only grew stronger in college when he co-founded One Life, a fundraising organization that supported initiatives like the Making Headway Foundation through community events such as spin-a-thons and dance marathons.

His desire to make a difference led him to join the Pediatric Brain Tumor Foundation’s (PBTF) advocacy efforts after graduation. Jacob played a pivotal role in the survivorship sub-committee, collaborating with PBTF to incorporate pediatric-specific language into the New York State Cancer Plan.

Jacob credits his neuro-oncologist for inspiring his path forward. His doctor provided more than just medical expertise. By treating Jacob with poignant care and compassion, he not only helped Jacob through the toughest moments but also exemplified how medicine could be both profoundly human and immeasurably impactful. Today, Jacob channels that same empathy into his medical studies as a third-year student determined to make a difference for others facing severe illnesses.

Connecting with PBTF and the NextGen Committee

For Jacob, PBTF has meant more than support during a harrowing time. PBTF offered his family guidance when they were overwhelmed with medical jargon and decisions. It gave them access to vital resources, advocacy, and a sense of belonging amidst uncertainty.

Now, Jacob is proud to serve as an active member of PBTF’s NextGen Committee. He’s especially excited about the committee’s role in empowering innovative fundraising and advocacy efforts. One key example? The upcoming “Pickle for Pediatrics” event, an inaugural pickleball fundraiser in New York City. Hosting a 64-team doubles bracket alongside food, drinks, and spectators, it’s set to raise both awareness and funds for pediatric brain tumor research and support programs.