Advocacy Alert
In a few months, much of the country will focus their attention on the race for the White House. By becoming an advocate with the Pediatric Brain Tumor Foundation and joining us on Capitol Hill at this year’s Alliance for Childhood Cancer Action Days, you can remind Congress that pediatric brain tumors don’t stop for an election.
Action Days give childhood cancer patients, survivors, caregivers, family members, and advocates from across the country the chance to meet with their home state legislators in-person, advocate for key policy issues currently before Congress, and make sure the voice of children with cancer is heard loud and clear. Training is provided on February 13 and meetings with legislators on February 14 will be scheduled for participants in advance.
A founding member of the Alliance for Childhood Cancer, the Pediatric Brain Tumor Foundation is proud to stand alongside advocates and speak with one voice about the most pressing issues facing the community. Learn how you can join us in urging Congress to pass legislation that would improve the lives of children with brain tumors by filling out the form below or emailing Director of Advocacy Mike Henry at [email protected].
Brain tumors are among the most complex conditions affecting patients across all age groups, particularly challenging within pediatric care. The term "brain tumor" encompasses a broad spectrum of tumors that can occur within the brain, each with unique characteristics and treatment approaches.
When a family member is diagnosed with Diffuse Intrinsic Pontine Glioma (DIPG), it affects everyone in the family, including siblings. Explaining DIPG symptoms to siblings is crucial for maintaining strong family bonds and fostering a supportive home environment.
