Advocacy Update
In a few months, much of the country will focus their attention on the race for the White House. By becoming an advocate with the Pediatric Brain Tumor Foundation and joining us on Capitol Hill at this year’s Alliance for Childhood Cancer Action Days, you can remind Congress that pediatric brain tumors don’t stop for an election.
Action Days give childhood cancer patients, survivors, caregivers, family members, and advocates from across the country the chance to meet with their home state legislators in-person, advocate for key policy issues currently before Congress, and make sure the voice of children with cancer is heard loud and clear. Training is provided on February 13 and meetings with legislators on February 14 will be scheduled for participants in advance.
A founding member of the Alliance for Childhood Cancer, the Pediatric Brain Tumor Foundation is proud to stand alongside advocates and speak with one voice about the most pressing issues facing the community. Learn how you can join us in urging Congress to pass legislation that would improve the lives of children with brain tumors by filling out the form below or emailing Director of Advocacy Mike Henry at [email protected].
The Pediatric Brain Tumor Foundation (PBTF) proudly announces an infusion of $1 million to help researchers, led by Dana-Farber Cancer Institute’s Drs. Pratiti (Mimi) Bandopadhayay and Rameen Beroukhim, launch a study into a novel therapeutic target and expand their research into overcoming treatment resistance and rebound growth.
Recently, the Accelerating Kids' Access to Care Act gained significant momentum in Congress when Charlie, a 12-year-old brain tumor survivor and advocate with the Pediatric Brain Tumor Foundation, testified to the U.S. Senate Finance Committee about the hurdles families face when seeking treatment for their child. Now, to see it become law requires your immediate action.
