Support for Families

Families who have an unmet financial household need, are seeking counseling for a member of the immediate family, or are seeking financial assistance for a child’s funeral or burial expenses, as a result of a child’s brain tumor diagnosis. Children (age 0-21 years) must be on active treatment, have had a recent recurrence or progression, or the family is experiencing a financial hardship that is a direct result of a child’s brain tumor diagnosis.

The Pediatric Brain Tumor Foundation works with social workers at the following partner hospitals to provide financial support to families of children in treatment. If your child is receiving treatment at a hospital that’s not currently on this list, please email us at [email protected] so that we can discuss ways we can help.

Alabama:

• Children’s of Alabama, Birmingham

California:

• Children’s Hospital Los Angeles
• UCSF Benioff Children’s Hospital, San Francisco

Colorado:

• Children’s Hospital Colorado, Aurora

District of Columbia:

• Children’s National Medical Center, Washington

Florida:

• Arnold Palmer Hospital for Children, Orlando
• University of Florida Health Shands Hospital, Gainesville

Georgia:

• Children’s Healthcare of Atlanta

Illinois:

• Ann & Robert H. Lurie Children’s Hospital of Chicago

Massachusetts:

• Dana-Farber/Boston Children’s Cancer and Blood Disorders Center, Boston
• MassGeneral for Children, Boston

Michigan:

• C.S. Mott Children’s Hospital, Michigan

Minnesota

• Children’s Hospital Minnesota

New York:

• New York-Presbyterian Morgan Stanley Children’s Hospital, New York

North Carolina:

• Duke Children’s Hospital and Health Center, Durham

Ohio:

• Cincinnati Children’s Hospital Medical Center, Cincinnati

Pennsylvania:

• Children’s Hospital of Philadelphia, Philadelphia
• UPMC Children’s Hospital of Pittsburgh

Tennessee:

• Monroe Carell Jr. Children’s Hospital at Vanderbilt, Nashville

Texas:

• Texas Children’s Hospital, Houston

Utah:

• Primary Children’s Hospital, Salt Lake City

The Butterfly Fund covers the following types of expenses:

• Household expenses including:
• Rent and mortgage payments
• Utility bills: electric, gas, water, trash service, phone or internet (not including equipment payments)
• Car loan or insurance payments
• Travel expenses associated with treatment including:
• Hotel or temporary housing
• Gas cards
• Meal cards
• Professional counseling services provided by a licensed counselor of the family’s choosing that best supports the family’s needs including:
• Individual counseling for parents/caregivers, patient child and/or siblings
• Couples counseling for parents/caregivers
• Family counseling
• Grief counseling up to one year after a child’s passing
• Funeral expenses

Expenses not typically covered include bills owed prior to the child’s diagnosis, cable, credit card and personal loan payments, auto repairs and medical or insurance bills of the patient or other family members, tuition or daycare expenses, and any late fees or past due amounts.