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Support for Families

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From the moment of diagnosis through treatment and beyond, the Pediatric Brain Tumor Foundation community is here for your family every step of the way. Here you'll find resources and support for pediatric brain tumor patients and survivors, their parents, caregivers, and siblings.

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Survivor Support Groups

When treatment for a pediatric brain tumor ends, the journey has only just begun. The effects often last into young adulthood and beyond, impacting relationships with families and friends, success in school and jobs, and long-term emotional well-being and mental health. But there is hope. Finding a supportive environment can empower survivors on their personal journeys.

The Pediatric Brain Tumor Foundation’s new Survivor Support Group offers an online experience specifically designed for pediatric brain tumor survivors. This is a place for survivors to meet others who understand what they’re going through, share stories, and empower one another. Our goal is to help survivors navigate the unique emotional and social challenges that come after treatment.

Why Join This Group?

  • Connect with a Supportive Community: Meet other survivors and find understanding and belonging.
  • Access Valuable Resources: Gain information and tools tailored to survivors’ post-treatment journey and quality of life needs.
  • Professional Guidance: Benefit from the support of a group facilitated by a mental health professional alongside PBTF staff.
  • Empowerment: Learn to navigate emotional and social challenges and advocate for yourself, with a focus on enhancing your quality of life.
  • Safe Sharing: Share your experiences in a secure and supportive online environment.
  • Consistent Support: Participate in structured group sessions, offering a reliable support system over time.

How It Works:

  • Who Can Join: Pediatric brain tumor survivors aged 17-25.
  • Meeting Schedule: Every other week, for a total of 10 sessions.
  • Facilitators: Sessions are led by a mental health professional alongside PBTF staff.
  • Assessments: Participants will complete a pre- and post-assessment to help us tailor the support to their needs.

Take the Next Step:

Fill out the form below to register for the Survivor Support Group or email [email protected] with questions. Your journey matters, and we are here to walk alongside you every step of the way.

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