Newly Diagnosed

We’re here to help you on your journey.

Learning more about your child’s brain tumor diagnosis will empower you to move forward and take an active part in making the best possible choices for your child's care. Here you'll find information to help you anticipate what’s needed in the first few months after your child's diagnosis.

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Choroid Plexus Tumors

Choroid plexus tumors form in fluid-filled spaces in the brain (ventricles) from tissue called the choroid plexus. These pediatric brain tumors may be benign or malignant and occur most often in young children.

About choroid plexus tumors

Most choroid plexus tumors are choroid plexus papillomas, benign brain tumors (low-grade) that tend to grow slowly and don’t often spread to other parts of the brain or spinal cord.

Atypical Choroid Plexus Papillomas are intermediate grade and will require careful surveillance after surgical resection. Additional treatments given after the main cancer treatment, called adjuvant therapy, may be recommended depending on how much cancer remains after surgery or if the cancer comes back.

Choroid plexus carcinomas are malignant brain tumors, high grade, that tend to grow more quickly and spread to other parts of the brain and spinal cord through the cerebrospinal fluid. Surgical resection followed by chemotherapy is recommended. Radiation may be added especially in older children with residual / recurrent disease.